Childhood Tumour Trust – New York

Childhood Tumour Trust occasionally, have opportunities arise for young people to attend events across the world. In August 2022 a group of 15 young people had the incredible opportunity to go to NYC to attend the Youth NF1 summit to learn more about their condition how to better advocate for themselves and others with NF1. It was an incredible experience for all that went. As a Youth Coordinator, I was part of this trip to oversea it and it was a great expereince.

Also in the summer, we did a camp for young adults, which brought lots of young adults with NF1 together. We did Raf building, walking, abseiling and lots of other activities. These trips are so important as it gives young adults the chance to come together and meet others with the same disability.